Hemangioma Family Burden: Creation of a Specific Questionnaire
نویسندگان
چکیده
منابع مشابه
Haemangioma family burden: creation of a specific questionnaire.
To develop and validate a specific questionnaire to assess burden on families of children with infantile haemangioma (IH): the Haemangioma Family Burden questionnaire (HFB). Items were generated from a literature review and a verbatim report from parents. Subsequently, a study was implemented at the Necker Hospital and the Pellegrin Children's Hospital for psychometric analysis. The HFB was ref...
متن کاملFamily burden in inherited ichthyosis: creation of a specific questionnaire
BACKGROUND The concept of individual burden, associated with disease, has been introduced recently to determine the "disability" caused by the pathology in the broadest sense of the word (psychological, social, economic, physical). Inherited ichthyosis belong to a large heterogeneous group of Mendelian Disorders of Cornification. Skin symptoms have a major impact on patients' Quality of Life bu...
متن کاملAtopic dermatitis burden scale: creation of a specific burden questionnaire for families.
BACKGROUND The notion of individual burden, associated with a disease, has been introduced to determine the 'disability' in the broadest sense (psychological, social, economic and physical). Atopic dermatitis (AD) is one of the most common chronic inflammatory skin diseases with an estimated prevalence of 5%-30% in children. OBJECTIVE To develop and validate a specific questionnaire which ass...
متن کاملDisseminated verrucous hemangioma with subcutaneous hemangioma: a rare association
Verrucous hemangioma is a rare, localized vascular malformation.The lesions are bluish-red, well demarcated, and compressible. Wereport a case of a 10-year-old girl with coexistent disseminatedverrucous hemangioma and subcutaneous hemangioma overthe nape of neck.
متن کاملEvaluation of Psychometric Properties of Walsh Family Resilience Questionnaire
Background: Considering the importance of family resilience and the broader range of applications that focus on the resilience of families, in the current study, the introduction of resilience structure of the family has been identified as an essential research demand. Therefore, consideration of the psychometric properties of the most widely used tools in this area, including family resilience...
متن کاملذخیره در منابع من
با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید
ژورنال
عنوان ژورنال: Value in Health
سال: 2013
ISSN: 1098-3015
DOI: 10.1016/j.jval.2013.08.1181